DURHANE WONG-RIEGER, PHD is Chair of Rare Disease International, Chair of Asia Pacific Rare Disease International, Treasurer of United Nations Non-governmental Organization for Rare Diseases. Chair of Patient Advocates Con-stituency Committee of the International Rare Disease Research Consortium, Patient Advisor to the APEC Rare Disease Network, member of the Editorial Board of The Patient- Patient Centred Outcomes Research, member of the Global Commission to End the Diagnostic Odyssey for Rare Diseases and member of Health Technology Assessment International Patient /Citizen In-volvement Interest Group.

In Canada, she is President & CEO of the Canadian Organization for Rare Dis-orders, Chair of the Consumer Advocare Network, President & CEO of the Insti-tute for Optimizing Health Outcomes and Chair of Canadian Heart Patient Alli-ance. She is a certified Health Coach.

Dr. Wong-Rieger has served on numerous health policy advisory committees and panels and is a member of Genome Canada Steering Committee for the Rare Disease Precision Health Initiative.

Durhane has a PhD in psychology from McGill University and was professor at the University of Windsor, Canada. She is a trainer and frequent lecturer and author of three books and many articles.